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Resources for MAST families

Connecting Families

Join the Patient List

We are working with multiple research partners to identify patients and begin a targeted scientific discussion around the most beneficial research paths. With a critical mass of patients and financial support, we can tap into the potential of the research community. Our goal is to identify 250 potential patients for future research.

Join the Email List

A Patient or Caregiver could receive email notifications of upcoming research studies or natural history studies.

A Supporter of MAST genes research could receive email notifications of upcoming fundraising or advocacy opportunities.

Join a Facebook Group

The MAST Genes Research Foundation Facebook Group is open to patients, caregivers, and supporters of MAST genes research.

Some MAST mutations have their own Facebook groups since they all have different symptoms and typical ways of presenting in a patient.

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